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Meet Those Who Inspire Us

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Jaś (Poland)

Jaś is a boy full of warmth and constant curiosity — and a great love for people. His eyes light up whenever he discovers the world in his own unique way: touching, sifting, pouring. Although his speech is very limited and many of his feelings remain as if locked inside his body, he communicates through his gaze and his smile. Changes in his surroundings are difficult for him, which is why safety, stability, and the presence of loved ones mean so much.

From his earliest months, he fought for every stage of development: first to hold himself upright, then to sit on his own, and finally — at the age of three — to take his first steps. Today he continues to make progress, though he still doesn’t recognize everyday dangers and needs constant care. Since the age of seven, he has also been living with epilepsy and takes medication regularly.

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Caroline (Germany)

Caroline is a little girl with a remarkable lightness and cheerfulness about her — the kind that can brighten an entire day. She explores the world with curiosity, sometimes quietly, and sometimes very loudly, especially when something delights or amuses her. She loves books, especially those with sounds, and music always brings out her most radiant smiles.

She is full of affection — when she sees someone she loves, she hugs them with all her strength, as if trying to hold on to the moment. She knows no envy or anger; she simply enjoys the little things, sharing her pure and honest joy with everyone around her.

Caroline lives with epilepsy and needs to take medication regularly. She is very small and delicate for her age. She learned to walk at the age of four and still moves with some unsteadiness and a touch of ataxia. She uses several aids — eye patches, glasses, and lower-leg orthoses — yet she faces each day with quiet determination. She speaks only a few words, but she communicates beautifully through her eyes, gestures, and laughter.

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Jerzy (Poland)

Jerzy feels most at ease outdoors, where he loves to play and spend time with his older brother. Although he does not speak, he expresses himself clearly through his eyes and his smile. He enjoys meeting people, is curious about new faces, and happily reaches out to others.

Jerzy lives with hypotonia, but regular physiotherapy helps him make steady progress in his mobility. He is very slim, even though he enjoys eating — especially pizza and chocolate, which never fail to brighten his day. Animals bring him a great deal of joy, and being around them always lights up his face.

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Lottie (USA)

Lottie is a bright, spirited girl with a strong will and a wonderful sense of humor. She loves snuggles, bath time, and music. She is not yet walking or talking and receives daily support from Physical Therapists, Occupational Therapists, a Speech Therapist, and ABA Therapy. Her diagnoses include a kidney stone, Celiac Disease, Global Developmental Delay, Hypotonia, Amblyopia, and Autism. Despite these challenges, Lottie approaches each new day with remarkable resilience, meeting the world with determination and curiosity.

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Tomek (Poland)

From the very first moment, you can feel a gentle brightness in Tomek — a kind of inner calm and cheer that can lighten any day. Despite many therapies and hospital stays, he keeps a sense of optimism that strengthens his whole family. He is happiest when playing with his beloved older sister or splashing in the water, laughing at every little splash. Riding a horse during hippotherapy brings him pure joy, as does the warmth of his “auntie therapists,” with whom he gradually built a deep bond. And at night, he falls asleep cuddled up to his mom, surrounded by a mountain of soft toys that make his world feel safe and gentle.

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Victoria (Spain)

Victoria does not walk or speak yet, but her eyes are full of joy and curiosity. She loves the warmth of the sun and playing with her older sister — those are the moments when her smile shines the brightest. Despite numerous hospitalizations and surgeries she has had to endure at such a young age, Victoria approaches life with remarkable energy and a true appetite for new adventures. Every day brings her another chance to explore the world in her own, beautiful way. You can follow her journey on Instagram and Facebook.

Social Media : Facebook      Instagram

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Mateusz (Poland)

Mateusz is a boy who fills his home with calm and joy. He feels happiest among his loved ones, where he can sense warmth and everyday closeness. He loves to help—especially with laundry, which he hangs with care and pride. He enjoys order and cleanliness, as well as life’s simple pleasures: fresh rolls, juicy fruit, and the smiles of those who receive a little gift from him.

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Lucy (USA)

Lucy is a joyful, gentle girl who is thriving in Kindergarten. She receives support from a Special Education Teacher as well as Physical, Occupational, and Speech Therapists. Although she faces Hypotonia and Global Developmental Delays, Lucy continues to make steady progress thanks to her dedicated care team. She loves swimming, trips to the park, and spending time with her family — the place where she feels happiest and safest. With consistent therapy, Lucy keeps moving forward one meaningful step at a time.

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Filip (Poland)

Filip carries a natural joy that shines through in everything he does. He’s happiest when he can create — arranging puzzles in his own unique way or building simple Lego City sets guided by imagination rather than instructions. He loves movement, especially the freedom and happiness he feels in the water. Music lifts his spirits immediately, and dancing is his favourite way to express joy. He loves soft textures, warm hugs, and the closeness of people he trusts. But he shines the most when he can help — that’s when he truly blossoms, knowing he is needed and appreciated.

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Luca (USA)

Luca is the youngest in the family and their only son — full of curiosity, energy, and constant movement. He loves babbling, exploring his sisters’ toys, and getting around with enthusiastic army crawling. He attends weekly Physical Therapy and has Hypotonia along with an atypical form of Club Feet. With consistent care and support, Luca continues to grow, learn, and make steady progress every day.

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You Can Change The Lives of Our Heroes

Today, you can help us move beyond managing PUS3 symptoms to actually curing them by creating a therapy that would otherwise never exist. 

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